Is Nothing Sacred?
Gathering human genetic samples raises uneasy questions
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Helen Cordes Utne Reader Online
The goals of the
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Human Genome
Diversity Project (HGDP) sound laudable: By taking DNA samples
from the world's indigenous peoples, scientists will be able to
document the amazing diversity -- and interconnectedness -- of
human beings. Plus, any unique genes discovered -- such as the
heart-attack-resistant genes that were found in the residents of an
isolated Italian community -- could help fight disease.
But HGDP critics fear that the massive multinational project,
which is underway in several countries, is at the least misguided
and at worst, dangerous. The Rural
Advancement Foundation International (RAFI) calls the venture
'biopiracy,' likening it to widescale plundering by drug companies
of medicinal plants and healing lore from indigenous communities,
who see none of the profits from the quickly patented plants or
resultant drugs. In RAFI's May/June 1995 communique, the group
notes that scientists and their corporate partners are already
pursuing gene patents in a race within the 'genomic industry' to
claim and commercialize genetic material. For example, a California
genomics company hopes to patent an asthma gene from samples
collected from the people of Tristan da Cunha, a tiny island near
Brazil where asthma rates are high. So far, the benefits doled out
to residents include a machine that tells them if they've got
asthma.
RAFI also worries that the projected $30 million project will
divert foreign aid funds that could be better used for critical
health concerns such as access to clean water, food, and
vaccinations. Worse, knowledge of a peoples' unique genes could be
used to develop equally unique biological weapons.