My Cure is Killing Me
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First, my student insurance quickly collapsed. I exceeded the
laughable $750 annual cap on prescription drugs in a little over a
month. My other option was Medicaid, the national program for the
poor or disabled. Medicaid asks not, 'Are you sick enough to
qualify?', but 'Are you poor enough?' It does not have room for
those who can support themselves but cannot afford their medical
bills; those who are often told, as I was recently, to make
themselves poor by spending money--or, as elderly couples in
Kalamazoo, Michigan, and elsewhere have been instructed, to pay for
their funerals now to shed excess funds. The reasoning behind such
advice is counter to the work ethic many of us learned as children.
In essence, the government is telling us to become welfare
recipients for insurance. Leave welfare, and you lose your
coverage.
With no other alternative, I had my patrons write letters in which
they confirmed that they had loaned me the money I possessed. With
proof that the money I had wasn't mine, I waited the better part of
a day at Harlem Hospital for an audience with a Medicaid clerk. She
looked at me, at my application, then at me again, and said, 'I can
tell you now, you ain't gonna get it.' I asked her why, and she
said that there were thousands of others more needy than I.
It took over three months, but I did get it, and eventually
Medicaid saved my life. During those three months without coverage
I relied on the generosity of the medical community, whose doctors
still take seriously the Hippocratic oath's injunction to do no
harm. One resourceful medical worker, whose motto was 'We helps
those who needs it most' provided me with free samples and recycled
drugs -- that is, drugs donated by patients who no longer need
them, or by the relatives of patients who have died. Recycling is
as illegal as it is widespread, but it's necessary when so many
can't get what they need. I have given medicine I no longer use to
medical centers, and I have been helped in kind. In fact, a few
months before my transplant, I visited an acquaintance who had just
received her kidney. Though still groggy and in pain, she promised
me that the remainder of her Epogen supply, a drug that helps
create red blood cells, would be mine. She saved me thousands of
dollars.
I also had necessary medicines air lifted from Spain, where, as in
almost every other industrialized country but this one, the
government regulates prescription drug prices. My friends sent me
what I needed, incredulous every time I bemoaned our Kafkaesque
system.
Once Medicaid was in place, I began in earnest the hunt for a
kidney donor. A donated organ can become an unrepayable gift heavy
with obligation and gratitude. But a lifelong quid pro quo is
better than the alternative, namely, joining the waiting list for a
cadaveric organ. Those who are on the list must wait their turn for
someone to die in a hospital while on a ventilator. Though organs
are the scarcest medical resource, Western countries have wisely
outlawed their sale, preventing their becoming a commodity
available to the highest bidder only. The contradiction that organ
donation should transcend economics, while the medical coverage to
keep these same organs healthy should not, has apparently escaped
our legislators' attention.
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