Calling All Recruits for the Caregiver Corps

It's time to build a Care Movement to serve the underpaid, overworked, and invisible


| July-August 2000



The socially conscious, consumer-savvy baby boom generation is beginning to do business with one of the most dysfunctional institutions in our society—the elder-care system.

What boomers are finding is that the search for decent, affordable care for aging parents who can no longer care for themselves can be a financial and emotional nightmare. Good home care is expensive and Medicare, the federal health plan for the elderly, pays for very little of it. When families opt for a nursing home, they get another shock: Medicare and private insurance don’t pay for much of that, either. And even after demanding about $30,000 a year, some nursing homes can’t even manage to keep residents safe, clean, and comfortable.

The alternative: A family member—usually a woman—puts aside other callings to stay home and provide care. Most do it with a great deal of affection and no outside help. Many give up a much-needed source of family income.

Can’t we do better than that for our families? Yes, but it will take nothing short of a consumer and human rights campaign to bring about change, says Deborah Stone, a fellow of the Open Society Institute. Writing in The Nation (March 13, 2000), Stone calls for a “care movement” to change the way we treat millions of children, elderly people, disabled people, and their caregivers.

“We need a movement to demonstrate that caring is not a free resource, that caring is hard and skilled work, that it takes time and devotion, and that the people who do it are making sacrifices,” she writes. The first step will be to build a coalition of what Stone calls the care triangle: those who need care, stay-at-home caregivers, and paid care workers. But aren’t families who want affordable care and workers who want a living wage fighting against each other? Stone argues that the two goals overlap more than they conflict. In Los Angeles and San Francisco, for example, unions representing home care workers joined with disability activists and the elderly to set up systems that allowed the caregivers to negotiate higher wages and benefits. As a result, clients are getting better service, Donna Calame, executive director of the San Francisco Public Authority, told Stone.

“I see a different kind of person coming in to be a health care worker,” Calame says. “They seem more stable.”