My Cure is Killing Me
A kidney transplant gave the author new life. But like millions of Americans without adequate health insurance, he now can't afford the drugs he needs to stay alive.
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Eric Trump George magazine
One September morning two years ago, a courier delivered a box the
size of a small television set to the door of the house in suburban
New Jersey where I lived at the time. I brought it inside, slit the
seal, and began emptying the contents onto a sunlit table. First
out was a month's supply of a smoke-green pill called Cytovene.
Then came CellCept of the blue-and-orange capsule, pink Procardia
and Xantax, puckish Prednisone, milky Mycostatin, Bactrim, and
lastly, carton after carton of shark-gray, beer-scented
Cyclosporine. Though I was familiar with them, the drugs' names and
uses were still as strange to me as creatures from a remote galaxy.
I stacked the cartons, bottles, and vials to form a small citadel.
And in the half-lit room, with shadows and sunlight rippling over
it, my citadel became an emblematic tableau, a personal milestone
marking the divide between my former life and the one to
come.
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'For the rest of your natural life' ran the words of my physician
and countless pharmacopoeias. For the rest of my natural life, I
would not leave this medicinal fortress. For the rest of my life, I
would be joined at the hip to the pharmaceutical industry, whose
discoveries were and are in large part responsible for this, my
life's encore. For the rest of my life, I would be living with a
kidney that in cellular terms belonged to my aunt - a kidney that
was in me, but not of me.
Stunned with gratitude and helplessness, I looked once more into
the box. Within lay a stuffed penguin, the company's mascot, on top
of a staggering itemized bill: $3,047.38 for a two-month supply of
medicine. For the rest of my life, I would have an expensive drug
habit if I wanted to keep my kidney.
Despite this nation's unprecedented prosperity, 45 million
Americans have no health insurance, a number that has increased by
about one million a year since 1994, according to a recent Kaiser
Foundation report. While 85 percent of the uninsured work, or live
in a family where someone does, most are the medically indigent:
too poor to afford the high premiums of private insurance, yet too
'wealthy' to be eligible for Medicaid. And millions more Americans
- not just the elderly, whom presidential candidates like to woo -
lack adequate prescription drug coverage. As one of them, my
struggle to get the drugs I need every day reaches beyond the
problems of someone with an organ transplant. It illuminates the
troubles of all Americans, both healthy and ill.
Buying private insurance for a transplantee is either impossible or
prohibitively expensive. And Medicare covers only those who are
over 65 or disabled, and then for only 44 months after their
transplant. For more than a year now, I have been living without
insurance of any kind, depending for my drugs on physicians'
generosity, the beneficence of friends who live in countries where,
unlike here, prescription drug prices are controlled, and on a
charitable indigent pharmaceutical program, which provides me with
one -- but only one - of the vital medications I need. I have spent
much time trying to understand how, without providing basic
sustenance to our citizens, we can brag about our wealth and power;
why we are still hearing echoes of the promising rhetoric of
September 19, 1945, when Harry S. Truman declared that 'the time
has arrived' to help the millions of Americans living without 'a
full measure of opportunity to achieve and enjoy good health...[and
without] protection 'against the economic effects of sickness'; why
politicians such as Bernie Sanders of Vermont and Brian Schweitzer
of Montana have to take busloads of seniors to Canada to purchase
the cheaper, mostly American-made, medications there; and why I, an
American, have flirted with the idea of packing my bags for good to
live in a land where the sick don't suffer a punitive relationship
with their government. For the medications I need keep me alive.
They are the rent I pay to stay in my body. In theory, even one
missed dose can translate into a rejected kidney. The choices I
have had to make (go to the doctor or pay the rent) are so common
that they have become acceptable to a nation that prides itself on
justice for all.
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